a*muze*ing ~ the blog of Kylie Clark | Mornington Peninsula Photographer » Mornington Peninsula Photographer

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More ups and downs….

Well – today has been another rollercoaster ride – all in one day.  Firstly – good news – our home has definitely been refinanced – so we will be able to pay off all the incidental bits and pieces that we owe, WIll can do his course, and we will be able to live more comfortably!

Secondly – Maceknzie had her weekly check-up with  her paediatrician today.  Whilst we were there Dr L phoned her cardiologist (Dr G) to get the low down.  I’m afraid it’s not good.  Dr G (the top cardiologist that we can have) has never seen a case like Mackenzie’s ever!  She has lot of thickening of the heart muscle in both the right and left ventricles.  The closest we can get to naming it (but it’s not what Mackenzie has!) is Hypertrophy Obstructive Cardio Myopathy.  Yes – sounds big.  Is big.  Major heart surgery required.  She will have an MRI first to explore.  Then a catheter procedure to explore some more.  Then open-heart surgery to scrape away the excess muscle. A very tricky operation – since the muscle will be ‘relaxed’ , and it will be difficult to judge the amount of tissue that needs to be removed.  Three-odd days in intensive care, then 10 days or so in hospital. 

You know what – I was feeling okay about it all until just now.  Now that it’s on paper – it seems more reas, and I have big crocodile tears emerging from my eyes.  My poor ;ott;e girl.  She is so strong, robust and ‘huge’ (Dr L’s term!)  We have no idea of a time frame at present – could be ages away – who knows.  What we do know is that she is a strong little thing, and is a fighter.  She can get through this.  To look at her – you would NEVER know that anything is wrong.

May_2006050

Look at those big blue eyes.  Please – all those people that pray – please think of my little Mackenzie.

Onto much happier things.  Look what I am now the proud owner of (well – when the order comes in!).
Eos350d_kit20a

How happy am I.  A Canon EOS 350D.  we got  THE most amazing deal. Twin lens kit (18-55mm and 75-300mm), a 1GB Card, a tripod / camera bag pack, an RC remote control and 2 year extended warranty for well under $17000.  Very very happy.  I cannot wait to get started.  Unfortunately there are no silver bodies in stock – so I have the black body – all fine!  It’s all on order from Canon – hopefully next week it’ll come in!  thanks to the house refinance – otherwise there would be no digital SLR for me for a long long time!  Now I have to figure out how to use the thing!  Anyone got any photography books for me?!

Nearly forgot – I have a layout of sorts to share!  I LOVE Christy Lyles tagbook tresure’s kit – you MUST check it out.
Whyiloveyou_web

Crediits – Christy Lyle’s TAGBOOK TREASURES Kit – tag book, staple, paper clip and twill ribbon.  My BIRTHDAY BASH kit – green tag paper and felt flower.  The peg and dirty notepaper are also mine!

We had a big day today – as I’m sure you can tell.  Amongst it all – Madison had a couple of little mates over this morning.  They played so well together.  No whining and groaning at all.  The little boys are twins – Charlie and Ed – and they a pretty cool!  It’s not too bad having 4 children in the house at once!  I took ‘em all to the park, and they had a great old time, until Ed fell off the play equipment – he now has a super-sized bruise on his head.  Poor fellah!

Righto – I think I have rambled on enough for now.  Enjoy your evening.  Oh OH OH – thanks to everyone who wished me Happy Birthday, and left comments regarding the Birthday Bash Kit!  I hope you all enjoy it!  Remember to let me see your layouts!

Hey hey – who is up for a weekly blog challenge?  I hvae a couple of ideas running through my head.  Of course there will be a prize in it for you!

14 comments

Kylie - Oh My your poor little princess….you are both in my prayers.

Yen - Oh my gosh about your little one..My prayers are with you. I hope everything for the best for your family.

Anyway, what cool camera you have there! Can’t wait to see your new pics coming soon..

Take Care!

ShyDigiScrapper - My prayers are with you all. She is tough and she is strong! Doctors are amazing also! Have faith and trust that all will be well. Thank you for the freebie! It is wonderful!

Rebecca - Heyo,

You are an amazing woman to tell us all in one post about such things. Your darling Mackenzie must get her own strength from her Mommie although I haven’t the pleasure of knowing her Daddy so he might have something to add to her beautifulness too! Lol. Seriously though, my prayers have been sent and will continue to be sent along with others I am telling God to keep an eye and a hand on. Now I’m not saying that I can tell God what to do but I know he listens especially to prayers for ones like your darling little one.

I would love to see what you come up with for a weekly challenge. I may not be able to do a weekly one but I will definitely put my hand in from time to time. Sounds like fun!

Oh, and congrats on the camera! Looks like loads of fun! Yooohoooo!
:)

Ashley - Happy belated birthday. You and your family are in my prayers. You seem like such a strong mother.

Mousey - Oh sweetie!! Great big **hugs** and lots of prayers for you and Mackenzie!

Brittany - Hugs and prayers–always.

And…blog challenge? Heck yes!

Tracie Glass - Lucky you getting that Canon! What a deal congrats! I also bought Christy Lyle’s TAGBOOK TREASURES Kit I love it, but I wanted to ask you where you sell your designs? Id love to buy your old notebook paper! Thanks for sharing your alphas also i am downloading the cheeky ones now! Thanks alot and I hope you can get back to me!

Lisa - Kylie I have tears in my eyes and preys in my heart.. I am thinking of you all in this trying time.. bless you all

Nancy Comelab (aka belgianangel) - I so hope yout little girl will be allright, Kylie! And I wish you strength to get through this! {{{hugs}}}

By the way.. I’m up for a challenge! Hit me! Lol…

Fiona - I’m so sorry to hear about Mackenzie Kylie. My thoughts and prayers will be with you all. Big hugs!

Kirsty Blinston - Hi Kylie

I just bought the exact same camera two days ago!! Its great and you’ll love it!! Cant wait to see some pics
Kirsty

clikchic - Big Hugs Kylie! It must be so scary for you to see your little girl have to go through so much. I will be thinking of you!

You will LOVE the camera.. I love mine.. takes amazing photos!

DanniL - ((((Hugs)))) Kylie, my thoughts and prayers are with you and your family *mwah*

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